So I am totally in love with Makily's Neurologist.

He is the sweetest man. The last several times we have seen him he has joked around. He remembered Makily by how she claps feet and with how much force. This kid is totally limber people. Sometimes I'm appalled and impressed at the positions she sometimes gets herself into. I will go and reposition her and she will look at me, annoyed, and wiggle RIGHT BACK into the awkward position I just changed her from. She's funny with blankets like this too. You will get her all tucked in, snug and tight and as soon as you step away she'll grin and start kicking it off. She'll have it up to her waist in no time flat. Then she'll giggle while you put it back. She'll play this game as long as you will.......or until she's craving Spongebob.....she is addicted.

I allow it though.

Call me an enabler....lol.

wow

That was a rabbit trail if I ever saw one.

ANYWAY

I love the doctor he's friendly and sweet to Makily and he also is the one that admitted the misdosing on Makily's diastat. Most doctors would have blamed everyone else and their brother or just avoided the topic altogether. Not time. He said right up front that the Nurse Practitioner had written it that day and that it was their (as in his entire office) fault and how sorry he was. wow.

Dr. El Bohy feels that we should change NOTHING right now even though Makily had a suspected seizure.

He says since the seizure did not affect her respiratory system or heart rate that it's worth the gain in progress towards walking and communication.. I agree wholeheartedly. Now if she starts having longer, more frequent or respiratory compromising seizures then we will obviously rethink this.

I'm pretty confident in this decision as Makily was totally interactive, giggly and happy today. She didn't nap ONE time. She's just overall happier.

I'm holding my breath and hoping that we have no more issues from here on out.........we'll see.