Sometimes I think my life is a sitcom/drama all in one....

Okay so our heat and air went out over the weekend and of course it was cold...it's been warm for like 2 weeks now and here it is cold again! We figured we would run and get a duraflame for the fireplace until Monday. We call Walmart at about 10 pm and they say they have them. We bundle Makily up, and make our trek to Walmart. We walk all over looking and cannott find any fireplace logs. We ask a few employees, they say there is not any in stock. I explained that we called earlier to make sure they had them before we drug our 2 year old with an ear infection and cough out in the cold night air and were told they had them. No one had a response for me other than a stupid look. *sigh*
I did talk to the manager and he called every Walmart from here to Gainesville and no one had them. I don't know why he called so many stores as we wouldnt have driven 30-40 miles for one....hey at least he was trying to help.
We ended up spending the night at our friends house. I went to Bargain Barry's (stop laughing) the next morning and they had several boxes of duraflames and I bought two boxes. We scheduled for someone to come out today (Tuesday). We had a problem 2 years ago with our a/c freezing up and a breaker. The guy that came out basically flipped a breaker which fixed the problem and then tried to sell us a very expensive new heat and air system and swore that ours wouldnt last another month....this was 2 years ago. I made sure not to call the same company because I felt like they had tried to rip us off back then...I was also 9 months pregnant with Makily at the time.
So this morning the a/c & heat man walks in and I think "gee he looks soo familiar". Well come to find out IT WAS THE SAME DUDE!! He was working for a different company back then. I wanted to scream. What are the chances of ALL THE heat and air places in Ocala that I would get the same guy...again. I immediately was on guard for bull crap. Allen had installed a new thermostat the night before thinking that may fix the problem as neither the heat or air would even turn on, still didnt work. After looking around and flipping and playing with the breakers they realize that one of the breakers is bad, . It will not flip and stay flipped and makes a scary errrrrrrr noise....GREEEEEEEEEEEEEEAT! Then the a/c man starts to try and sell us a new thermostat.....yes that's right, he claims the one we had installed the day before was "a piece of crap". He had one in his van for $90...plus the $65 trip charge and labor for installing it. Allen and I went back and forth and I finally just said "look sir, my daughter has many medical problems and I can't go back to work, we really don't have $90 for a new thermostat right now.". He did soften which surprised me. He tried re-installing the thermostat we had put in the night before. The switches kept flying off. I saw it happen once, I swear he turned the a/c on and the switch flew across my kitchen and hit the wall. Had someone been standing there they would have gotten hurt. When I actually saw the thing flying I did have to laugh....the a/c man just kept saying "I've never seen a thermostat like this" (it was only $15) Finally I broke down when he said it just wouldnt go on. I told Allen to do whatever he thought we needed to do. He told the guy to go ahead and install the $90 one because we had to have one to make the a/c work. The dude was great and said "no man, let me help you out, I am sure you can get a cheaper one that WILL WORK at Lowe's...I am sure it's the breaker". So thankfully he only charged the $65 trip charge.
Then we start calling around to find the breaker...well guess what? Just our luck.....the system we have in the house is "obselete" and they dont' make breakers for it anymore! Allen went all over town looking for the breaker. I got online and found the company that manufactured them and they said they could get us one in 3 days but if we had an ACE Hardware they may have it. So after calling every ACE hardware in Ocala and Belleview.....WE FOUND IT! $42.....THANK YOU GOD! Allen got it installed and then he replaced the thermostat with a digital one that looks EXACTLY like the one the a/c man wanted to sell us. It was $29 though.
Our heat and air are working like a charm now! My husband is Mr. HandyMan and I have told him that all day.

We are still fighting for Makily's stander and her kidcart. I havent complained too much to them lately as I believe once she is 2 years old they cannott fight it anymore. Someone at the insurance company let it slip to me and when I questioned it further they clammed up. After 6 weeks of crying, praying, screaming and begging I FINALLY GOT MAKILY'S PREVACID TODAY! It took that long to get it approved. I swear insurance companies really are enough to make me CRAZY! I started her on it tonight so we will see how she does with it and if it works better than the Zantac.

I am working on Makily's birthday party and can't wait! It is SO HARD to believe my baby girl is going to be 2 years old. What a joy and miracle she is. I look at her and wonder what goes on in her little mind. It must be so frustrating for her not being able to tell me what she wants or what is hurting her. She has such a sweet spirit though and I am so fortnate that she only really cries if she is hurting or has pooped her pants. She is so laid back compared to how she was as a newborn. She constantly screamed and cried and was NEVER happy. It seems so long ago but like yesterday at the same time. I remember thinking she would cry forever, that was before I truly knew all the things that were wrong with her little body. How her tummy didnt empty and how she refluxed straight up her esophagus all the time. I was feeding her every 2 hours then too, I can only imagine how awful that must have been for her. Can you imagine the torture of being force fed through a tube every 2 hours while your stomach is already full and it's refluxing and burning your esophagus? I feel bad thinking of that time because I was emotionally unavailable in every way...and poor Makily was miserable. God Bless Allen, I don't know how he got through it all. He is my rock...forever and ever.

Please pass the cheese, I need to whine.....

I am tired, frustrated, angry, irriatated and sad.

Makily was measured on Nov 16 for a stander and a kidcart. I havent called the company for several reasons. One is that I have terrible anxiety about the fact that my not quite 2 year old needs both of these things. I finally broke down, got over myself and called last Thursday. I was told Makily was denied for the kidcart.....they said it was "a deluxe wheelchair" and they would pay for a "standard wheelchair". Okay WHAT IN THE HECK would we do with a standard wheelchair. My kid is 17 lbs and 29 inches long...she would fall through one of the arm holes. I guess I have to ride in it with her on my lap and Allen can push us both. What a freaking joke.
The company told me they hadnt heard anything back on her stander....which is really what we DESPERATELY need NOW. It will help Makily to bear weight on her legs and I pray to God one day...to walk. I called the insurance company and the A-HOLES say they never got the claim for it. So I call the stander place and they SWEAR it was sent over on 12-23-05 ALONG with the order for the kidcart....NO one can tell me WHY it is that Makily was measured for both of these items on 11-16 but nothing was even submitted to the insurance company until 12-23.
So then I find out that while YES we have BCBS of Alabama that all claims are sent through BCBS of Florida first and THEN to BCBS Alabama. Both of which tell me they have NO ORDER for the stander. Only an order for the kidcart that was denied on Jan 31....they claim after the denial nothing else was done BUT THE stander/wheelchair people insist they have sent more information along with a letter stating why Makily needs both of these items.
So since last week I have been on the phone with a bunch of morons who don't communicate with each other and insist on making my life harder than it already is. There were several times I was left on hold for 17-20 mins at a time. I am sure they were hoping I would go away and give up but I didnt. I am hardheaded. I was even told by one person we didnt have insurance through them and I insisted he continue to look us up because WE DO! After arguing back and forth I spelled out Allen's first name LOUDLY and he said "oh i am sorry here it is". That's how the conversation was started...this was after pushing 800 buttons just to get a live person....OH AND MAKE SURE you push the buttons in the right combination or you will be in a neverending cycle of push this or that button. I HATE AUTOMATED PHONE SYSTEMS WITH A PASSION!!! Have you seen the commercial where the guy is on the phone and his house is on fire but he won't hang up for fear of loosing the phone call after pressing 10,000 buttons...that guy is ME!

Do they think I WANT a stander? Do they think I am doing this for fun? My child NEEDS the stander, she needs the kidcart......why is it that i have to fight, beg and plead for things she MEDICALLY NEEDS and that we pay insurance premiums EVERY MONTH for?! I just feel like DAMN I have ENOUGH stress on me, I don't want to have to sit on the phone for hours......on hold, pushing buttons and arguing in circles over something that my daughter is entitled too.

When I woke up this morning Makily's medport on her feeding tube had popped open in the night so from 2am - 6am formula pumped all over my floor, Makily and her bouncy......I should have known today was gonna suck.

As of right now, BCBS of Florida has the order for the stander and for SOME REASON it didnt get forwarded to BCBC of Alabama. After my phone call today they are supposedly "urgently" sending it to them and it will go up for review....to which I AM FREAKING SURE they will deny her and then we will have to start all over again. As for the kidcart.....I am really not sure what the hell is happening. I was told it was denied....then Makily's caseworker wrote a letter of medical neccessity and that it was supposed to be reviewed again but honestly I don't know. I am going to give it a few days and call back on Monday. It's really wearing me down and I am getting nothing but upset and frustrated. It's so tiring spending that amount of time on the phone every day and getting NO WHERE.