Tuesday, April 08, 2008

Serenity.



God grant me the serenity

to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.

After yesterday's "excitement" I received SO MANY emails and comments of support. My blog got 400+ hits and so I have decided that this person's evilness turned into something good. Thanks to her that many more people know about Emanuel Syndrome and what it's like to have a child with a disability. I can't count how many people came to my blog yesterday and then went and read Makily's birth story and diagnosis day. Due to this woman's hatefulness Makily has educated even more people in what true unconditional love is. She has yet again shown people not to sweat the small stuff.

I have also realized that some people can't be changed. The more people rebutted this woman the more she continued to say mean things. She is old and set in her ways. So I thought the Serenity prayer was rather fitting for today's entry. I can't change this lady, I know it, I accept it and I will move on.

I admit that that my heart fluttered with each comment of support and love for my child. Some of them were not very nice to "the woman" and while I may eventually remove the nastier ones, I would be lying if I said they didn't make me smile....just a little. It reminded me of when I was a kid my and sister Deborah would not let ANYONE pick on me. I was in awe of how many "big brothers and sisters" Makily has all over the world....that have never met her personally but that she has touched just the same. I am so grateful.

I am uplifted by all of you.

Thank you for loving my baby like she was your own.

So to the person that made all the ugly comments on my FOUR YEAR OLD'S video (I won't write her name on this entry because she is not worth it) THANK YOU for helping to spread awareness of Emanuel Syndrome. Now even more people know about it and are learning what it is to love unconditionally. They are learning that just because you can't walk or talk does not mean you can't change THOUSANDS of hearts and lives. That a person's value has nothing to do with their intellect but everything to do with the mark they leave on this earth.

I will leave you all with this. It is a statement made by a dear friend of mine named Marnie. I have never met her in person, but I have known her since Allen and I began our struggle to concieve Makily. We have spoken on the phone and she is as funny and sweet as she is online. She has supported us and uplifted us during times when I didnt think I could even get out of the bed in the morning. I sat and read this today with tears streaming down my face.

Thank You Marnie, I love you honey.


I was thinking about Trish's you tube last night

And It had me in tears thinking about how your life can change in One single moment. How that woman was so hateful she could not
see past the hurt she wrote on her computer keys. And How it would actually Be read by the mother of that Child... What would her words do the Mother who loved that child? Sometimes we never think 2 seconds of the words we say to some people.

The more I thought about this the more it Got me Thinking Of that Question.. The One you don't want to think about, Trish. I just have to let you know that is a question ANY ONE OF US COULD FACE ANY MOMENT. We could walk out our door today and with one single accident one of our children, Our husbands Or us could be the one that would be forever unable to care for ourselves. What would happen then? We all know. We would pick up the pieces and do the best we could. We would love like we have always loved.. cared like we have always cared. It makes NO DIFFERENCE if we are born with a Disability or it comes to us in Life.
Makily was made in the likeness of God, and he Made her just the way he in visioned her to be.. to Become. He knew that through her perfect blue eyes she would touch so many people around her. Those eyes will NEVER change. The bounce in her hair, the warmth of her smile.. You will look at her at 12 and still see the same love you SEE RIGHT now. You will look at her at 18 and be amazed how much love this single child had brought to your life. The same as every other mother here will.
God knew the moment you were born, Trish, that You would have a child that would NEED YOU beyond time or measure. God knew YOU could handle such a responsibility. No greater compliment is that.. Nothing.
I just thought instead of reading something so negative , like yesterday, one should read something of love and acceptance.

Makily touches people everyday. Your love and devotion to her helps ME be a better mother. I love you.



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Makily I love you with every ounce of my soul.
You are amazing. Your value is immeasurable.

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*Sidenote: Makily and I are headed to Orlando tonight for a sleep study with C-PAP trial. Please pray that the night goes smoothly and that we both get at least a little sleep.*


6 comments:

michelle hays said...

Tears streaming down my face because of how beautiful you make life sound. You are an amazing mother, Makily is changing lives because she is a reflection of you. Youre genes carry great things too!

I love the last thing you wrote to your princess. We all love her and will stand by her. Im here for you guys.

much love

Heather W said...

Trish... you are amazing.. I like what Michelle said... that Makily is changing lives because she is a reflection of you... this is soo true on so many levels Trish. We love you so much and will always be here. Thank you for educating us and most importantly, sharing your little angel with us.
Love,
Heather (shrubski)

sami2009 said...

Trish,
Great post! It really made me proud to know you! You guys are so amazing, I am so inspired by you. I will be praying for you always. Your entry really made me think about all the wonderful people I have met in my life, and how much they make me glad to be alive! Thank you!
Love and hugs,
Sami

Anonymous said...

tara said...

YEAH! great post!

jen said...

Outlook is everything. Thank you for always helping me to keep the outlook I so desperately want to have. You're awesome. love ya

Unknown said...

AMAZING! Beautiful! Bravo to you and to Makily! Without knowing you IRL, we think of Makily and pray for her when she's ill and rejoice with you when she does something amazing. As others have said, she is PERFECT and she is so lucky to have such a great mommy! Hugs to you!