Update on our home study review:
First off I CAN'T GET OVER HOW QUICKLY THINGS ARE MOVING NOW!
Our home study got to Orlando on Wednesday afternoon.
It was reviewed and revisions requested in record time:
THREE DAYS!
They had a few questions of course involving my sanity (or lack thereof ;-)! LOLOL No really there was a discrepancy of whether or not I was on meds. The form the doctor filled out didn't specify but the home study did so I could understand the confusion there. I really thought it would take an act of congress to get the letter from the doctor that clarified things. I called the office manager Peggy and she took care of it IMMEDIATELY. THANK YOU SO MUCH! I seriously figured that would totally hold things up but it was the first thing that was completed!
There were also some simple things about how we will juggle caring for Makily and a new baby. They also asked how we will include Makily when doing "normal" activities with a "normal" child.
It's when we get questions of that nature I realize how NOT NORMAL my life is. To us feeding Makily is "normal". So she has a tube and is hooked up to a pump. Takes us all of five minutes to take care of...so not a big deal AT ALL. I don't even think twice about it. Same thing with the apnea monitor and all her meds and therapies and crap. It's just normal to me and while it's different than the care you would give a typical child I really don't think it takes that much more time or effort to do on our part. We've been doing this four years now....Allen and I are pro's!
As far as including Makily in normal activities I had to laugh at that question. Part of me really wanted to say "well we will leave her out by the road to fend for herself while we go frolic together". Makily is MORE than included in EVERYTHING we do. I mean this kid has been to all the Disney parks at age FOUR more times than I can count. She has traveled more in her FOUR years than I have in my life, she's been to the mountains...THE CHILD'S BEEN OUT OF THE COUNTRY FOR GOD'S SAKE! We have NEVER left her with anyone to go and do something that she can't do, (unless it's date night for Allen and I and so then she stays with Granny) we find a way for her to participate.
Here's the "La La La Lame" part:
One of our back ups is Justin. They said his name came up with "calls for service". I didn't know what that meant and they explained that it was calls to the police or 911. The first two were because there were a couple of punk kids that live near him that were stealing materials from a house being built next door. They would steal the stuff and were using it to build a skateboard ramp. Justin called the police about it and so they want him to right a brief explanation of that. They have the report and can read it so I am not sure why the heck they are wanting him to write a statement about it. The third call says something about "a five year old cousin accidentally calling 911". This one Justin has NO IDEA what they are talking about so I am going to have to get more details from them.
I WANT TO THANK MY BACKUPS FOR ALL THE INSANITY THEY HAVE BEEN PUT THROUGH:
MY MOM
MY DAD
JUSTIN AND TRISHTWO.
Seriously with each forgotten form they just QUICKLY got it all together if not immediately, within 24 hours and have done nothing but try to help speed this process along. THANK YOU GUYS, WE LOVE YOU SO MUCH! Everyone else that plans on becoming backups I am calling today sometime to find out where/when/how to get your fingerprints done. I have been told three different ways and so I need to call and verify before I send y'all on a wild goose chase.
Here is the part where I am a wienee.
I cancelled and rescheduled my appointment to see the gyno. I just did not want to go. I know I suck and I realllllly need to go but I could not psych myself up enough to go. I mean seriously does anyone enjoy seeing the crotch doctor? I think not. I can't believe I am discussing this on my blog.....I have finally crossed the line haven't I?
I have to go pick Makily up between 10-11 so I can take her to gastro today. I hate the drive to Orlando. *sigh*
Tomorrow Makily has a field trip to The Villages again. I was told I wasn't allowed to go this time. Surprisingly I said Makily could go anyway. It was such an amazing thing last time that I couldn't imagine not letting her go. I just got a call though saying they ARE allowing me to go so I am STOKED!
Promise to take LOTS of pictures!
5 comments:
Trish,
One funny thing I realized when we brought Addison home was that Nathan is now our "easy" child. Who would have thought?!?!? I can't wait to read the post saying you have gotten a call for a baby:-)
I keep meaning to ask - if you go to Arnold Palmer and go to the (I think) second floor they have a wall of kids feet on plaques. You can see Nathan's famous baby feet!!
Adreanna
I need to get some pointers then. Im still overwhelmed with doing the therapies, doctors appointments and having a house "in order." I look forward to hearing more news.
Funny how when your child first gets diagnosed, they spend all this time telling you that it all just becomes natural and "easy", but the minute you try to do something typical, they want to know how you plan on doing everything with a special needs child. Humph! Every kid typical or special needs has their issues. I've found that some things with Little J are easier than Princess J and vice versa. I can't wait to "hear" you have a new baby in your house! I now Makily is going to love it!
I don't blame you for putting off the GYN!
Wow...a fun blog. Your family!! I love it.
big hugs
Gosh, I suck! Sorry, just now getting to comment on your entries. You aren't a weinie. Let's face it, its no day at the beach. I can think of about a million other things to do than go to the gyno. Scrubbing toilets for starters...
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