Sunday, August 24, 2008

Just Stuff.....

<span class=

So I have been researching Medicaid and all that goes into getting it for your handicapped kid.

I read up on KidCare, Healthy Kids and Medikids.....(by the way these are all different forms of Medicaid for kids why they have to have 800 different names I don't know).

Basically as one of my reader's mentioned we "*should* qualify for MediKids (which I had never heard of before). I applied online this evening.

HERE'S THE CATCH
(well there is a couple actually)

You can't have insurance on the child in order to be approved for it. We do NOT want to drop Makily from our insurance. There are about 100 reasons why but the more important ones are that we:

1. Possibly will have to pay $159/month for MediKids.
(they do have income guidelines and if you are over income you have to pay $15-20/mo, if you are REALLY over income it's $159/mo, we would never be so lucky to just have to pay the $15 a month, although I won't know this for sure until I speak with them.) We wouldn't mind paying for it, if it wasn't for our next three problems.

2. Due to the fact that we are in Marion County it is my current understanding that any specialists that Makily needs will HAVE to be at Shands. I would rather have you cut my eyeball out with a spoon than go back to that place. Seriously I have major issues with them for MANY reasons but after the NIGHT FROM HELL THERE I just can't go back.

Overdose my kid on narcotics once.....Shame on YOU.....overdose her twice SHAME ON ME!

My point here is that if we are accepted and pay the $159/mo premium, we won't get that much benefit from it because they won't pay our doctors in Orlando. I also do not believe they will pay for the hospital visits to APH, so then we would be left holding the bag for that and NOT even have our private insurance anymore to cover us (because remember we have to drop Makily's insurance to even qualify) leaving us in an even bigger mess then we are already in right now.

3. Dr. Pierre is no longer accepting Medicaid. I WILL NOT switch pedi's with Makily because NO ONE knows Makily medically like Dr. Pierre.

The Infamous Dr. Pierre
(she's so going to kill me!)

<span class=


4. I have been told that they (meaning Kidcare/Medikids) give auth's for treatment to doctors and other facilities and then refuse to pay. I know a few health care providers that have stopped accepting it altogether because they just don't get paid.

So I am going to call them and speak with them in length tomorrow. It seems like everywhere we try to find help there is a road block. I am hard headed though and will continue plugging along!

*****************************************************************

Things are great with Makily. She was TERRIBLY sweet all during church today. She giggled and laughed and was a riot. She FINALLY goes back to school tomorrow. She went ONE day last week and the rest was canceled for Hurricane Fay. My sister Elizabeth was over the other day and I showed her how well Makily is doing with her PECS board. She got EVERY one of them right for Elizabeth. I am so proud of her.

Catching Flies and DIGGIN' her new comfy car seat!
<span class=

****************************************************

All is quiet in the situation with Little J. I haven't really heard anything from anyone in two weeks now. I like the quiet but it makes me a smidge nervous. I could call and check up on the case but strangely enough I like to live in oblivion when it comes to this. The GAL is coming over this week so if she has heard anything I am sure she will fill me in. We have started bathing him in the big tub now. He LOVES it. I was nervous that he wouldn't be steady enough yet but he crawled around in that tub like a crazy man!


<span class=

I will leave you with this. My mom had given this to me when Makily was very little. It hit home because at the time I was desperately trying to put things into perspective and prioritize my life. One of my blog friend Laurie posted it the other day and so I am following suit:

Enjoy!



A Mayonnaise Jar and Two Cups of Coffee.


When things in your life seem almost too much to handle, when 24 Hours in a day is not enough, remember the mayonnaise jar and 2 cups of coffee.

A professor stood before his philosophy class and had some items in front of him. When the class began, wordlessly, he picked up a very large and empty mayonnaise jar and proceeded to fill it with golf balls. He then asked the students if the jar was full. They agreed that it was.

The professor then picked up a box of pebbles and poured them into the jar. He shook the jar lightly. The pebbles rolled into the open areas between the golf balls. He then asked the students again if the jar was full. They agreed it was.

The professor next picked up a box of sand and poured it into the jar. Of course, the sand filled up everything else. He asked once more if the jar was full. The students responded with a unanimous 'yes.

The professor then produced two cups of coffee from under the table and poured the entire contents into the jar, effectively filling the empty space between the sand.

The students laughed.

'Now,' said the professor, as the laughter subsided, I want you to recognize that this jar represents your life. The golf balls are the important things - God, family, children, health, friends, and Favorite passions--things that if everything else was lost and only they remained, your life would still be full. The pebbles are the other things that matter like your job, house, and car. The sand is everything else -- the small stuff.' If you put the sand into the jar first,' he continued, 'there is no room for the pebbles or the golf balls.

The same goes for life. If you spend all your time and energy on the small stuff, you will never have room for the things that are important to you. So... Pay attention to the things that are critical to your happiness. Play With your children. Take time to get medical checkups. Take your partner out to dinner. Play another 18. There will always be time to clean the house and fix the disposal. 'Take care of the golf balls first -- the things that Really matter. Set your priorities. The rest is just sand.'

One of the students raised her hand and inquired what the coffee represented. The professor smiled. 'I'm glad you asked'. It just goes to show you that no matter how full your life may seem, there's always room for a couple of cups of coffee with a friend.






6 comments:

Post Tenebras Lux said...

Hi Trish,

I'm a lurker, usually. But I wanted to come out of the woodwork to let you know how amazing you are, and what a great job you're doing. You floor me--with the amount of work you get through, your love for Makily and J, the tough and tender spirit you do it all with, the way you let "the power of God be displayed" in your lives. Good job.

Lucy
Mom to Elijah, PRS

Andrea "The H family" said...

Hi girl..you see?! See the comment above. I told you girl...a ministry. Love you!
Wished FL wasn't so difficult with medicaid. It's a tough system...I learned the hard way. Of course..don't get me started on the people that get free benefits and don't pay taxes. It's maddening. At any rate, (much to say about this)
Hugs...A

Lori Osero said...

THinking of you guys often. Love the saying hope you don't mind if I post it also. Take care

http://oserofamily.blogspot.com

Torina said...

Hi there, I have been lurking for a few weeks now. I am an adoptive mom of three great kids with special needs. My daughter has many disabilities and is on permanent disability (Medicaid). HOWEVER, when she turns 18 she will have to reapply. You are probably wondering how this applies to you :) We are actually taking classes on how to reapply for the Medicaid and Social Security. We have learned that nearly EVERYONE gets denied the first request. Nearly EVERYONE, no matter how pronounced the disability, has to appeal. And sometimes multiple times. This is part of the "process". It is horrible but I wanted to let you know that, so you could appeal because Makily has permanent disabilities and is obviously eligible. It will just take some arm twisting. I like that you have contacted your legislative folks but those people all have healthcare and cannot relate. They may say they are sorry but they have never had to use the horrible systems they created. Even on permanency disability, we struggle sometimes to find people who will accept that type of medical coverage. Healthcare in this country is an endless battle but you are quite obviously a fighter...so keep on fighting :) You and Makily are awesome.

joyboytinkertoy said...

ok whats a pecs board?

Anonymous said...

tara said...you should stop emailing our useless government and email oprah!