Pop Goes the Mic-Key......again.

Amber so saved us!!

THANK YOU AGAIN HONEY!

Tonight when Allen was getting ready to put Makily to bed he said "Trish come over here and look at her button". I looked at it and said "what, it's fine"? He said it had been sticking out really far a second ago. This happens from time to time with her button so I didn't think much of it. I said "well let's check and see how much water is in the balloon just to be safe". I check the water level....there is NO water in it at all.

sigh

We just got our shipment for the month from our home health supply company for Makily. I asked them last week when insurance was due to pay for another button. They said it wouldn't be until November 27th. When I had spoke with the lady with Mic-Key a month or so ago she said she would send me TWO replacements instead of one since we technically had two go bad. Well she sent one and I never got another. I don't know why either.

Well Amber had read my blog and told me she had a spare button she could send me. It is a smidge longer than what Makily usually takes but the width is the same. We put that in tonight. The old button has a hole in the stem. I would LOVE to know what the heck is causing Makily to pop all these buttons. The lady at the manufaterer said that Makily's meds are "all really hard on a button" but who knows. You would think that most G tube kids would be on some kind of medications.

I am hoping this one lasts long enough to get the one that insurance will pay for at the end of the month. I had some people from AMT contact me via my blog (they are Mic-Key's competition) and I will call them and see what I can do to try their button out.



I am just at the end of my rope.

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My grandmother (Dad's mom) has been in the hospital for several weeks. She originally went in for diarrhea, vomiting and dehydration and ended up having to have her leg amputated last week. It's been rough on her and the family. Please keep her in your prayers. She is stable and doing pretty well right now, she's 91 so they doctors are cautiously optimistic.

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We have court on Wednesday. I am A NERVOUS WRECK about it. Things supposedly are set and planned a certain way but at this point nothing surprises me. People have been waffling back and forth so it will be interesting to say the least.

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We took Makily and J to see Madagascar Two Sunday. THEY LOVED IT! Makily especially. Her Granny is taking her to see it AGAIN this weekend. She is such a spoiled booger! We had to take her to Dr. Pierre on Friday. The school called saying she was running a fever and congested. She has been "crackly" for a few weeks now. I took her in and her temp was fine and chest sounded a little crunchy but okay. We are doing breathing treatments and CPT. She has some fluid in her ears too so we have been keeping an eye on her. She came home from school the other day wearing an "Indian hat" she had made in class. It shocked me because she hates anything on her head. Mrs. Leslie said she wore it happily all day. It was so cute.....it even said "Squaw Makily" on it. So funny!