The Big Day.

Today Makily and I will head down Orlando to say the night in a hotel. In the morning we will be at Arnold Palmer Children's Hospital to start her 48 hour EEG.



I am a little anxious just about BEING in the hospital with her as it's been quite a while since we have been inpatient. Sometimes that brings on flashbacks from the past and it depresses me. This will be the true test on HOW STRONG I have become and how much my medication works.

The good thing is I have a friend Whitney that is bringing me dinner on Tuesday night and is coming to hang out. That will definitely break the boredom for me and The Princess. My other friend Kiley's daughter Briella is having surgery Tuesday morning so I am sure we will be back and forth in each other's rooms and I'm sure between the both of us we will drive the nurses batty! lol

Everyone is noticing a difference in me. I'm slower to get angry. I'm able to catch myself now and I say "is it really THAT BIG of a deal?" in my head. If the answer is NO then I just say "meh....no biggie." Allen even told me yesterday how much more laid back and cheerful I am. this makes me happy.

I went to a birthday party for a friend yesterday and I was so relaxed and had such a good time. We did karaoke and drank, and ate and had a great time. Jakob ran around like a maniac and Makily enjoyed watching TV and playing with her toys.

My next entry will be the beginning of the video blog I am going to do for this hospital stay. I'm actually kind of excited.

I kind of feel this trip is going to be pivotal for me in so many ways. I want to see what coping skills I have perfected (or not) and I really do want to know what is going on in Makily's brain and if she is having absence seizures like I think. I don't care what kind she is having.....I just want them controlled. PERIOD. They scare the hell out of me.

This is a example of an absence seizure. Makily does something similar but since she can't walk or talk and since they are so vague like you see in the video it's hard to determine.

If anyone wants to come visit call me and let me know. I'll give you a time when we aren't doing anything and you can visit my girl. I'd like to keep this to the people we know or have met personally.

This week will be pivotal for me. It will be pivotal for Makily and her seizure control and care.

I wanted to say how thankful I am for all the comments and for all my blog readers. The maxi pad post got 752 hits in ONE day. I was baffled as it was only getting about 80 hits a day before I started blogging again. I'm going to keep it up. It's helping me in ways I can't even describe. It's therapeutic.

Love to you ALL,

Trish

I love how I look so serious and Jakob is chilling in the background. lol