An entry full of negativity..with a little positive..hooray!

I fell off the Jenny Craig wagon this week. I don't just mean I fell off the wagon, I jumped off and bounced a few times.

Weigh in tomorrow will not be fun.

Dusting myself off and jumping back on the wagon though.

SIGH

My sister had a HORRIBLY sad weekend at work. She and I went walking Saturday morning after she had gotten off work. She told me about her awful night and we were both in tears through most of our walk. I am sure the other walkers thought we were insane. She works in the Nursery and NICU.....nuff said.

Allen left for work this morning and J has been in rare form all day because of it.

We are almost capped out of our insurance therapy monies for the year so we have now cut down to just private speech therapy. She gets PT and OT at school but she needs the private therapies too so the fact that we still have NO BACKUP insurance is really making me insane. HealthyKids/MediKids denied Makily based on the fact that she already had Private Insurance. Lovely. I am starting to just accept the fact there is NO help for us. Unless Allen and I legally separate or divorce OR unless we give legal custody of Makily to someone else.....there is not help for us. I just can't bring myself to do either of those things. I have called and emailed Senators, Governers and State Reps with no help. I need to talk to an attorney but I doubt even they could do anything for us.

We were denied AGAIN on Makily's sleep safe bed. I am so frustrated with that whole process I don't even know what to do. The letters from the pedi and myself were awesome and there is really no reason they should NOT buy the bed. The denial just said "item not a covered DME item". The bed they want her to have is a death trap for a million reasons all of which were explained in the appeal letter. I guess they don't really give a damn if Makily gets sandwiched in the metal railing and or suffocates. They don't care if she entangles herself in all her wiring and tubing in the rails. What's worse is they are not giving me any other alternative of what other bed they WILL pay for that she won't possibly strangle herself in. I am willing to look at other beds as long as it's something safe.

I called the insurance commissioner of Florida, explained the entire story, they told me to call the commissioner of Alabama (our insurance is BCBS of AL). I call the commissioner of AL and they tell me that I need to call Florida. I am not even kidding. I wish I was. I really am tired of all this crap. I ended up calling the insurance lady at Allen's work and she is going to see what she can do.

I'll appeal it one more time I guess.

On a bright note Makily is FINALLY getting casted for her AFO's at school tomorrow. I have called and called and their staffing issues are finally resolved.

Things are looking BACK in our favor as far as J is concerned but right now there are still many unknowns. I am dealing with it though.

I also am waiting for a packet from the Therapeutic Riding Association. They will do Hippotherapy with Makily but I have to get all these releases and paper work filled out. I believe it's free so that's definitely a plus.

Makily's last EEG came back NORMAL. No change in meds everything was fine. I am going to see if the Neuro will just use the CT Makily had in the ER from when she bumped her head for her "yearly" CT. That would be nice to not have to go through that again.