Finding Our New Normal.........Again.

Things have been pretty good since I got out of the nut house. We are always adjusting to our life though. A friend of mine was just saying that as special needs parents you get used to one normal and once you are finally adjusted to a new normal then BAM it changes again. Always changing....always adjusting.

With Makily's EEG last week and Allen being off we still aren't on a "regular" schedule.

Monday will be an exciting new start for our family.

Allen has been working over the road as a truck driver for 14 years, 13 of which we have been together. When Makily was born nearly eight years ago we planned on him doing something local instead of over the road. When she was born we had no choice though because there was no way we could have taken a cut in pay OR lose our insurance.

Allen found out on Friday that he is going to be driving locally, meaning only in Florida. He should work basically 5AM to 5PM Mon- Fri and be home EVERY. SINGLE. NIGHT, off on weekends!

Trying to help Daddy fix the TV.


This takes a incredible amount of stress off of Allen as he has fears of what may happen at any time with Makily.........what if he is hours away? I've had to make that phone call a couple of times and believe me, it's never pretty. Then he drives like a bat out of hell all the way home and I worry not only about whatever is going on with Makily at the time but if Allen is in his right mind enough to get here safely. Very Stressful!



I have noticed positive changes in Makily since lowering her dose of Keppra and increasing her Topomax. She picked up a toy that was sitting NEXT to her and put it on her lap to play with it. Typically Makily DOES NOT pick up anything on either side of her TO PLAY with....it usually has to be in her lap. I saw her do it once and then asked her to do it again......and SHE SURE DID. That's progress. That's understanding. This kid is amazing.

Things really have improved in so many ways. I've had many people that have noticed the shift in my mood and how I handle certain things. I'm less hot headed and more patient. I find myself letting things go when before I would have probably made a big deal out of it. I ask myself "Is it really that big of a deal?" If the answer is NO I usually just move on.

I was really worried that people would be judgemental of me when I came out and announced I had been in the nut house. I'm shocked at how much support I have gotten.....that being said I have had a couple of people give me the pitiful eye and say "How are you doing?" like I am going to break out sobbing and spilling my guts at any moment.....okay so maybe they know me more than I thought! lol

My Kelly concert is THIS Thursday. Can't believe how close we are getting.

We went to the Market on the Square today. I found Makily an AWESOME tutu for her birthday party this year. It's ADORABLE. We got some candied jalapenos and some fried plantains too!

We also found this living room set. It was listed for $165 and we ended up talking them down to $130.....LOVE. A. DEAL.



For those local this was at Brother's Keeper down on the Square. They had some really great deals in there today and usually always do.

My grandmother is still having a hard time adjusting to the assisted living facility. Please keep her in your prayers. My mom and sisters are trying to do the best they can for her but she is just not very happy right now and so it's hard on everyone.

Overall I am happier than I have been in years. I have seen so much resolve in the last two weeks that I just know things can only get better. I am going to do another entry about life in the nut house soon. I know a lot of my readers are LOVING that part of my blog. I have tried to vlog but WOW it was bad. I'm gonna work on it a bit more though. I think it has to be spur of the moment rather than me trying to talk about one thing in particular.

We will see.