Makily Update.

I haven't updated on her in a bit so I figured I would.

She's had a runny nose since the New Year. We are on her third round of antibiotics and I *think* it may be clearing. We started out giving her Omnicef the first two rounds and she had RED poop for weeks, scared the school half to death. I admit the first time it happened on my watch it scared me too. I thought for sure she started her period (and just about shot myself in the face) but it's just a side effect of Omnicef turns your poop red. She had a double ear infection but luckily that cleared up on the first round of meds.

She's loving school as always. Kindergarten has been fun for her. She is walking with TONS OF HELP. I have to stand behind her, hold her arms bent at the waist and help her shift her weight. She takes steps, one foot after the other, she will not do this though until you stand her up and initiate it. She refuses to use a walker, does NOT want to hold onto it and when they try to get it to move with it, it's not very productive. I'm not sure why she is so against the walker other then she isn't thrilled with having to hold on, maybe a sensory thing still with her hands? She's lifting up her arms for the teacher to put her tray on the wheelchair now. She'll lay on her belly on a wedge for quite some time at school, for some reason she acts like I am killing her when I do it here at home though.

She had her first real eye doctor's appointment last week. It was a challenge but it went well. She kicked the nurse for putting drops in her eyes. I made sure to warn the doctor ahead of time that she's a kicker when she's mad and he should protect anything important to him! LOL. In the end he said her eyes/vision looks great. She's near sighted like me....in fact my and her vision is exactly the same. Crazy huh? No glasses are needed right now he said since she won't be driving any time soon (lol).

She's growing up fast and it's killing me. She's 35 lbs and getting taller by the minute. Her legs are so long and I'm not sure where she gets that from. We are all short in this family! I am sad to say that it's getting increasingly harder for me to carry her and lift her. She no longer fits in the double stroller. So I have been creative when I am out with the kids. Sometimes I will put her in the back of the cart and Jakob in the front. I just bought a larger jogging stroller so I hope that will last us for a while. We have the wheelchair but we leave that at the school. I miss the days of just being able to carry her indefinitely on my hip without a second thought. I don't want her to get bigger and grow up.

We are due for a follow up with Neuro, ENT and Cardiology. I am trying to get them all scheduled for the same day or maybe two days back to back so we won't have to drive back and forth and back and forth to Orlando.

It's hard to believe she will be six years old in just three days. So much has happened and I look back and think WOW what a whirlwind. I am so happy to know that we can just relax now. Medically speaking Makily is in a great place. While I know I can never TOTALLY let my guard down with her it's nice to be where we are with her. She's happy and healthy right now, has been for a while and I am so grateful.

We did some Spring cleaning over the weekend and I went through "the drawers". I had two of Makily's dresser drawers filled with mementos from her birth, hospitalizations, illnesses, clothes, pictures etc. I have avoided going through it and getting rid of some of the things I didn't need that were not important. I had tried in the past to go through it and my tears always stopped me. I got rid of a lot of things (a bag of pink jelly beans from six years ago, old envelopes, hospital bills and paper work).

I did happen upon the outfit I had purchased to bring her home from the hospital in. I saw it, held it and just cried. I remember buying it at Sears when I was about eight months pregnant. I was sad she couldn't wear it to come home in. In fact she didn't wear it until she was nearly nine months old. That's how small she was for so long. I guess that outfit represented the hopes, dreams and life I had before we knew anything was wrong. It brought back memories that I knew it would. This is a tough time of year for me. Her birthday is always hard. I can't help but remember how awful that first year was....especially the first six months.

Jakob's adoption has healed many hurts I have had over the years but there will ALWAYS be wounds that I carry.

I will always want more for Makily.

That will never go away.

I will always wonder what might have been for her.

I love you Makily, my angel, my teacher, my hero.....forever.